Presentation Information

Asmaa Mohammed Kurdi

Phenylketonuria and Breastfeeding: facts, challenges and reality

Abstract:

Breast feeding can be challenging in some special situations, phenylketonuria is one of these conditions that requires a lot of knowledge and support.

PKU is an inherited metabolic disorder that needs a special protein free diet to be followed lifelong, to grow normally, to avoid the irreversible and severe intellectual impairment and developmental abnormality. Years ago PKU was an absolute contraindication for breastfeeding, but with more research on the disease and the breast milk components, it is now strongly suggested to breastfeed a PKU baby along with his or her special phenylalanine free formula under close supervision from a dietitian and experienced breastfeeding supportive pediatrician. It is a difficult but achievable task, a prime example is my 3 PKU children who I managed to breastfeed for almost 2 years. Along with their PKU formula and special low protein diets they are enjoying healthy, normal mental and physical development.